Charlie Gard, the baby at center of legal dispute, has died
Baby Charlie Gard with his parents, Connie Yates and Chris Gard. Go Fund Me
by PHIL MCCAUSLAND
The family of 11-month-old Charlie Gard, a baby who spurred a debate about parents’ rights over end-of-life care, confirmed he had died Friday morning.
Charlie had a rare inherited mitochondrial disease and was not able to move his arms and legs. He also could not breathe unaided, see or hear.
The disagreement between Charlie’s parents, Connie Yates and Chris Gard, and London’s Great Ormond Street Hospital over his treatment resulted in a high-profile, months-long ethics battle.
The case captured the attention of world leaders, with Pope Francis and President Donald Trump both commenting publicly on the matter.
Charlie’s parents argued on behalf of their son and raised $1.8 million to bring him to the U.S. for experimental therapy. Three British courts ruled that further treatment of Charlie’s disease would cause him “significant harm.”
Courts had ruled he should be moved to palliative care, which would keep him comfortable until he died.
Charlie’s parents then argued that they wanted to take him home to die, but the British High Court ruled on Thursday that the infant would be moved to a hospice where he would be taken off life support.