ONLY ON 3: Mabry Kate's Law awaiting Governor's Signature - | Chattanooga News, Weather & Sports

ONLY ON 3: Mabry Kate's Law awaiting Governor's Signature

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Channel 3 has been following the story of Mabry Kate, a 10-month-old, who recently died of a rare disorder called Krabbe disease.

She showed no symptoms at birth, and by the time doctors identified it, it was too late. Now her parents continue to fight for the newborn screening that would save the lives of babies born with the disease, including, a son they just welcomed to the family.

On Friday, their fight for the state of Tennessee came to an end. The Senate and House voted unanimously to pass "Mabry Kate's law", now it awaits the signature of the Governor.

"What's so terrible about the disease is you're almost deceived because you have such a healthy pregnancy, and healthy delivery and the first three or so months of her life she was developing like a normal child would," said Christin Webb, Mabry Kate's Mother.

But slowly, Mabry Kate's sweet smile started to fade. Months went by with no answers for the family, until they were told the devastating news, Mabry Kate had Krabbe disease; A deadly illness that can be prevented, if caught early enough through infant screening.

But once symptoms start to show, it's too late. Mabry Kate didn't make it to her first birthday.

"We feel like no matter what we would have done, her time was her time and her mission here was short for us, but it was a huge mission and we can't be more proud of what she came here to do," said Webb.

Her parents believe Mabry Kate's mission was to save other babies from the same fate. And on Friday, her story did just that. A bill currently waiting on the Governor's signature would require every child in Tennessee to be screened at birth, so they may not suffer a deadly fate.

"It's a huge relief and I think we're filled with all kinds of emotions," said Webb. "Because of her life, hopefully other babies lives will be saved including her little brothers."

Baby Owen is just six weeks old now. He was tested for Krabbe after the passing of his sister and was given a cord-blood transplant. He's expected to live a normal, healthy life.

"Both of our kids are just clear example; like for Mabry Kate, if there isn't early detection and for Owen what happens when there is," said Webb.

Owen is expected to stay in the hospital for at least another month.

Advocates of the screenings are hoping to get every state on board; only 8 states currently screen for the disease.

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