Mother of Brain-Dead California Girl: 'She is Asleep'
Our NBC station, NBC 10 the mother of the 13-year-old California girl who was
declared brain dead after suffering complications during a
tonsillectomy says her daughter is "still asleep" in her first interview
since relocating her daughter more than 10 weeks ago from the Oakland
hospital where the surgery was performed.
"I do not use the word 'brain-death'
towards my daughter," said Jahi McMath's mother, Nailah Winkfield, while
in Philadelphia for the Terri Schiavo Life & Hope Award Gala
McMath underwent surgery to remove
her tonsils, uvula and adenoids to help her sleep apnea on Dec. 9 at
the Children's Hospital and Research Center Oakland. Following the
operation, she suffered massive bleeding and a heart attack.
Doctors at the Children's Hospital Oakland declared
her brain dead on Dec. 12, 2013 -- at which point they could no longer
treat McMath due to California state law.
"Once death is pronounced and is
validated by multiple physicians and well-established tests, as outlined
in the law, and a reasonable period has been provided to the family,
the hospital no longer preserves artificial respiration and
circulation," hospital officials said in a statement.
But the teen's family appealed the law, saying she still showed signs of life.
After a nearly month-long battle, McMath was relocated to an undislosed long-term care facility on Jan. 5.
"I've learned that if you really want
something and you really believe in something, you fight for it,"
Winkfield said. "One of the main things you fight for is your children."
The battle for the teen led the
Terri Schiavo Life & Hope Network to honor McMath's mother and
stepfather, Marvin Winkfield, with their second annual Terri Schiavo
Life & Hope Award at the Union League in Philadelphia Thursday.
"Jahi's family persevered through
extreme pressure from doctors, media and public opinion to enable their
child a chance to be properly cared for," Terri Schiavo's brother, Bobby
Schindler said. "More and more these medical decisions are being put
in the hands of hospitals and physcians rather than the way that it used
to be where the family was the one making these types of decisions."
"We believe in the protection of and
the value of life," said Schindler, who considers this a medical rights
issue for the disabled. "Just because ... they can't do what an
able-bodied person can do, we don't feel like there is any reason to
treat that person any differently than a person who doesn't have to deal
with those types of injuries."
McMath, who is unable to
communicate, moves her arms and legs, turns her head from side-to-side
and repositions herself in bed -- even sitting cross-legged, Winkfield
"Her movement is a big deal to me,"
she said. "If somebody was totally, 100 percent brain dead, I don't
think they'd be able to move as much as my daughter does."
But the Children's Hospital Oakland stand by its doctors' assessment.
"The loss of a child is a tragic
situation, regardless of when or how. Our hearts go out to the family
and we wish them peace as they grieve the loss of their child," the
hospital statement reads.
Winkfield, however, dismissed the remarks.
"I'm definitely not grieving a loss because I kiss
her everyday, tell her I love her everyday," she said. "[The hospital]
did everything they could to dehumanize my daughter so that people can
really envision a corpse on a ventilator."
Winkfield appreciates the facility
currently caring for her daughter, saying they refer to her by name and
treat her like any other teenager.
McMath's mother also takes steps to create a sense of normalcy for her daughter.
"I give her a manicure and pedicure every Friday," she said. "It's mandatory because that's what we did when we were at home."
Her daugher also has her hair braided and listens to music, like Rihanna and Beyonce, on her iPod regularly, Winkfield said.
"She is blossoming into a teenager
before my eyes," said Winkfield, who plans to remain by her daughter's
side for as long as it takes.
"I can do it as long as her heart is beating and as long as my heart is beating."